Link: Gluten Free Steve

Gluten Free Steve was diagnosed with celiac (coeliac) disease in April 2006 and started a website to share his gluten-free recipes, thoughts, so and so forth.

Reading Steve’s website really made the disease come alive for J., and he hopes he won’t be a doctor who tells a patient to “just avoid bread, cakes, pastries, stuff like that”.

Let’s talk about celiac disease, also known as “gluten-sensitive enteropathy”. Its occurrence rate is about 1:133 in not-at-risk groups, higher in those at-risk and with affected relatives. It can present at any age. While previously thought to be commonly an infant (6-18 months) condition when gluten is introduced into the diet, celiac disease now often presents later, especially between the ages of 10 and 40.

Celiac disease, besides being a major causes of chronic diarrhoea with failure to thrive in children is not commonly thought off in adult, and most medical students like J. only know that patients must avoid gluten which is present in the ‘BROW‘ foods: Barley, Rye, Oat, Wheat. Sound easy? Try putting it into practice. Now, regarding the diagnosis of celiac disease…

Symptoms (often non-specific, can be difficult to diagnose):
loss of appetite, nausea/vomiting, abdominal pain
anemia (usually lethargy, fatiguability, postural giddiness)
muscle wasting, distended abdomen, join pain

Tests:
Blood – anti-transglutaminase, antigliadin, antiendomysial antibodies
Stool – fat absorption studies
Endoscopy – small bowel biopsy showing villous atrophy with resolution after trial of gluten-free diet

Treatment:
Gluten-free diet for life!

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4 responses to this post.

  1. Posted by JB on March 10, 2008 at 8:15 pm

    Sorry, your info is woefully out of date. Prevaence is 1:133 by most studies and truly presents at any age.

    Reply

  2. Hmmm good point, 1:4-8,000 was in the 1950’s. I now realise, as you said, the prevalence in not-at-risk groups is 1:133. And that while it used to be thought to be a disease of infants, it now commonly presents later, between the ages of 10 and 40.

    Thank you for the information, have amended the above post.

    Reply

  3. Celiac disease is a multi-system disorder that can affect any part of the body. Symptoms differ for different people. For example, although gastrointestinal symptoms are the types discussed in most literature, only 20% of those with celiac disease actually exhibit gastrointestinal symptoms. 51% exhibit some sore of neurological problem at time of diagnosis. Psoriasis, miscarriage, headaches, anxiety, heart disease, weight gain or loss, various cancers, infertility, irritable bowel disease, acid reflux, diabetic instability, osteoporosis, arthritis, autoimmune diseases and many more can be directly or indirectly linked to celiac disease. (It is important to say here that celiac disease is not the only cause of these symptoms.) We gathered information on over 300 signs symptoms, associated disorders and complications for our book, Recognizing Celiac Disease. What is really shocking is that although the time to diagnosis from first presentation of symptoms to a doctor is 2-3 weeks in Italy and other countries, it is over 10 years in the United States. In fact, over 97% of those estimated to have celiac disease have no idea they have it and their doctors have no idea they should even be looking for it or the ways it presents.

    Reply

  4. Posted by glutenfreesteve on March 15, 2008 at 2:39 am

    Hey – thanks for the posting about me!

    Reply

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